In addition to learning from the information on this site, you also may learn from the wealth of experience housed in the ACC patient community. Information from peer-to-peer groups should not substitute for the advice of an experienced physician, but it may provide useful perspectives and emotional support.
The Facebook pages are categorized by those for all patients (General), for patients with primary tumors in a particular location (Body Sites), and for patients based on country or language (Geography-Based). All Facebook groups listed are private except where followed by “PUBLIC GROUP”. Whether part of a private or public group, everyone should be careful about divulging private health information as it may be shared by others.
Facebook – General
ACC Organization International
Adenoid Cystic Carcinoma (How do we cope?) PUBLIC GROUP
Facebook – Body Sites
ACC – Breast (ACC of the breast)
ACC – Tracheal/bronchial (ACC of the trachea and bronchus)
Primary Cutaneous ACC Support Group (ACC of the skin)
Facebook – Geography-Based
Without a Ribbon (Australia)
Carcinoma adenoide cistico ACC Italia (Italy)
Carcinoma adenoideo quístico (Español) Compartiendo información y apoyo (Spanish language)
Salivary Gland Cancer UK (United Kingdom)
Websites – Geography-Based
CORASSO (France)
Patiëntenvereniging Speekselklierkanker (Netherlands)
Salivary Gland Cancer UK (United Kingdom)
Macmillan Cancer Support: ACC Forum (United Kingdom)
