For Patients
For Researchers
Adenoid cystic carcinoma (ACC) is a cancer of secretory glands, typically originating in the head and neck region, but also found in the breast, skin and elsewhere.
ACC is diagnosed in about 4 of every 1 million people each year and afflicts more than 200,000 patients throughout the world.
ACC’s progression is typically gradual though some cases are aggressive. The disease has a tendency to grow along nerves and metastasize to the lungs.
ACC is an equal-opportunity disease that might strike anyone. It is not inherited and is not associated with smoking, drinking, infection or ethnicity. Women comprise about 60% of ACC cases.
Together with a growing network of researchers, ACCRF is accelerating research efforts needed to find effective therapies for ACC patients.
The Adenoid Cystic Carcinoma Research Foundation (ACCRF) was started in 2005 with the goal of getting better therapies to ACC patients as fast as possible. Over the past 15 years, a motivated community of patients and researchers has fueled advances in scientific understanding and a strong pipeline of ACC clinical trials. ACCRF has been instrumental in bringing about all the major ACC research milestones.
