Marnie Kaufman, Co-Founder and Director
Prior to co-founding ACCRF, Marnie held senior positions in Development at the Massachusetts General Hospital and the National Geographic Society. She also served as a Marketing Representative at IBM after earning her B.S. from the University of North Carolina. Marnie manages the patient relations, accounting and fundraising functions of the foundation.

Jeffrey Kaufman, Co-Founder and Executive Director
Three years after co-founding the Adenoid Cystic Carcinoma Research Foundation, Jeff left his position as a Managing Director of Putnam Investments to serve full-time as the Executive Director. Prior employers include MFS Investments, Salomon Brothers and the Irving Trust Company. Jeff earned a B.A. from the University of North Carolina and M.B.A. and M.I.A. degrees from Columbia University. He manages the scientific and operational functions of the foundation. In addition to his current service on the Scientific Advisory Board of the UNC Lineberger Comprehensive Cancer Center, Jeff previously served on the Council of Councils of the National Institutes of Health, the National Advisory Dental and Craniofacial Research Council, the Council of Research Advocates of the National Cancer Institute and the Cancer Research Committee of the American Society of Clinical Oncology.

Elisabeth Bakri, Director
Co-Founder, Aida Health
Elisabeth Bakri is a co-founder of Aida Health, a software company that provides a platform for healthcare provider teams to manage care plans at scale and thereby realize the potential of population health management. Aida Health’s platform is being co-developed with the Mayo Clinic. Prior to Aida, Elisabeth worked for technology startups as a software engineer and at the Maryland Psychiatric Research Center as a research assistant on several studies of schizophrenia. While taking pre-med classes at night, her husband was diagnosed with ACC and she was instrumental in organizing his care and treatment. This experience led her to ACCRF and to her interest in improving ACC patients’ experience through more support and education. Elisabeth graduated from the University of Michigan with a Bachelor’s degree in Mathematics and a Master’s degree in Accounting. During her time at Michigan she was also a Varsity letter winner in cross country and track & field.

Tom DiLenge, Director
Senior Partner, Flagship Pioneering. Former President, Biotechnology Innovation Organization (BIO)
Tom DiLenge joined Flagship Pioneering in 2022 as Senior Partner, Global Public Policy, Regulatory & Governmental Strategy, leading Flagship’s public policy, regulatory, and governmental affairs functions. From 2016 to 2021, Tom was the President of the Advocacy, Law & Public Policy Division of the Biotechnology Innovation Organization (BIO), a 1,000+ member trade association, where he was responsible for strategic and operational management of BIO’s domestic and international advocacy, policy, communications, alliance development, legal and Board governance functions. Prior to this role, Tom served as BIO’s General Counsel and Vice President for Legal and Intellectual Property for a dozen years. Before joining BIO, Tom served as the Chief Counsel and Policy Director for the House Homeland Security Committee, and as Deputy Chief Counsel for Oversight and Investigations on the House Energy and Commerce Committee. He began his career in the Washington, D.C. office of the international law firm Mayer Brown working in its general and appellate litigation practice. Tom graduated summa cum laude, with a degree in Political Science and Economics, from Fordham University, and from the University of Virginia School of Law with honors. He currently serves as a member of the Life Science Leader Advisory Board and as an adjunct professor at the University of Virginia’s Frank Batten School of Leadership & Public Policy.

Emma Kinloch, Director
Founder, Salivary Gland Cancer UK
Emma Kinloch is the founder of Salivary Gland Cancer UK. She is an experienced patient advocate focussed on collaboration, co-production and ensuring the patient/public voice is fully integrated into cancer research from strategy and priority setting, through delivery, to output, evaluation and dissemination.
Having joined the National Cancer Research Institute in 2014 on their Head and Neck Group, she is now their Consumer Lead, Chairs the Consumer Forum and sits on the Strategy Advisory Group. In addition, Emma holds a number of positions in the UK on funding committees, strategy groups and Trial Management Groups with various institutions. At a European level she acts as a Patient Advisory Group member to the EURACAN rare head and neck cancer domain.
Emma has over two decades of experience in finance. Specifically, asset management, and has worked in both the UK and Asia, covering all products. Her most recent position is leading the governance of the UK and European regulated businesses.
Emma studied Experimental Psychology at Corpus Christi Oxford, holds an MSc in Criminology and Masters in Organisational Psychology. She is currently studying for a Professional Doctorate in Occupational Health, Psychology and Management at the University of London.

Ralph Mollis, Director
Town Manager, North Kingstown, RI
Ralph Mollis is the former Rhode Island Secretary of State, serving from 2007 – 2015. Ralph previously served as Mayor of North Providence, RI, for ten years, was self-employed as a Government Relations & Public Policy Consultant and was Vice President/Director of Operations of LAMCO (Pension & Investment Advisory Firm). Ralph is currently the Town Manager of the Town of North Kingstown, RI.
As Secretary of State, Ralph was recognized for his work in introducing e-commerce tools for existing and new small businesses in Rhode Island as well as his work and legislation relative to comprehensive election reform. As Town Manager and Mayor he has been recognized for his hands-on, business oriented leadership in the successful management of the town budgets as well as various infrastructure improvements within the recreational, business, senior citizen and education communities.
He is a graduate of Saint Anselm College, attended Southern New England School of Law and, in addition to his passionate service as a Board Member of ACCRF, Ralph also serves on multiple committees and Boards, including as a Board Member of SlamT1D (a non-profit which organizes national events to raise awareness and provide programs for children with Type 1 Diabetes). Ralph lives in Rhode Island and is the father of 3 adult children and has 6 young grandchildren.

David Morse, Director
Investment Management, Jennison Associates
David Morse is currently a managing director and fixed income portfolio manager specializing in US investment grade credit at Jennison Associates. Previously, David spent 14 years at Mellon Investment Management in a variety of roles, most recently as the managing director of global credit and head of credit research. Prior to that, David worked at Merrill Lynch and PricewaterhouseCoopers. He earned a Bachelor of Arts degree in Economics and Mathematics, magna cum laude from Lafayette College and Master of Business Administration and Master of Science in Finance degrees from Boston College. David is also a CFA Charterholder. At Lafayette, David was a member of the Division I Varsity lacrosse team.
David lives in Winchester, MA, with his wife Susan and their three daughters. David became passionate about raising funds for and awareness of ACC after Susan was diagnosed with ACC in May 2020.

Bozho Todorich, MD, PhD
Ophthalmologist and Retinal Surgeon
Dr. Bozho Todorich is a practicing clinical ophthalmologist and retinal surgeon with a special interest in clinical and translational research. He graduated with honors from the Pennsylvania State University College of Medicine with an MD and a PhD in cell and molecular biology. He did his residency in ophthalmology at Duke University and subspecialty fellowship in retinal surgery at Beaumont Hospital. As a recipient of many national honors and an invited lecturer in his field, he has published extensively, is a scientific reviewer for a number of journals on retinal disease, and has been a principal and co-principal investigator on a number of clinical trials in ophthalmology. He has joined the ACCRF Board of Directors with a special interest in advancing clinical and translational research in ACC.

Elizabeth Wehlage, MD
Obstetrician-Gynecologist
Dr. Elizabeth (Beth) Wehlage is an obstetrician and gynecologist physician, now retired. She obtained her medical degree at Indiana University and completed her residency at the University of Chicago. She spent her career caring for mothers, their babies, and teaching. Beth won several teaching awards during her career, however her utmost gratitude is for the support of her faith and family through her ACC journey. Beth is an active member of various ACC patient support groups, including serving as an administrator/moderator for the “ACC Warriors” Facebook group. Her compassionate and educated feedback has helped bring comfort to many ACC patients over the years. She comes to the ACCRF board with a special interest in patient-centered communications.

Nicole Spardy Burr, PhD
Nicole (Nikki) Spardy Burr, Ph.D. joined ACCRF in April 2016 and was named Director of Research in March 2019. Dr. Spardy Burr is responsible for helping to develop and implement the ACCRF research strategy. Her duties include managing ACCRF’s currently funded research proposals, working with the scientific advisory board to identify new research areas and fostering fruitful collaborations within the ACCRF research community. Nicole earned her Ph.D. in Biochemistry and Molecular Genetics from the University of Pittsburgh where she worked on dissecting the mechanisms of human papillomaviruses (HPVs)-induced cancer. She then trained in the field of functional genomics in the laboratory of William Hahn, M.D., Ph.D. at the Dana-Farber Cancer Institute where her work focused on identifying genomic vulnerabilities in cancer cells with DNA repair defects. Dr. Spardy Burr also has worked as a freelance writer for the scientific journal, Cancer Discovery, and served as a research representative of the American Cancer Society.

Reed Motz
Reed Motz joined ACCRF in February 2023 with responsibility for the foundation’s communications with patients, families, researchers, and physicians. Previously, Reed held development and communications positions at Goodman Theatre and The University of Chicago Booth School. Reed earned his B.A. from the University of Dayton.