In order to help ACC patients make an informed decision in selecting doctors, the Adenoid Cystic Carcinoma Research Foundation (ACCRF) and the Adenoid Cystic Carcinoma Organization International (ACCOI) offer a listing of physicians who have treated ACC patients. The names of physicians included in this listing have been provided by ACC patients or family members.

Patients should pay special attention to each physician’s specialty (Surgery, Radiation Oncology, Radiology or Medical Oncology). Although each patient’s situation is different, the current standard of care for newly-diagnosed ACC patients usually involves surgery followed by radiation. Often, a surgeon will be the first medical professional seen by an ACC patient, with later referrals to radiation oncologists, radiologists and/or medical oncologists. Radiation oncologists may treat primary tumors that cannot be removed surgically, residual disease after surgery or recurrences. Radiologists may be effective in treating isolated metastases. Medical oncologists may suggest systemic therapy (chemotherapy and/or targeted drugs) if residual disease cannot be surgically removed or the patient has advanced metastatic disease. Ideally, a multidisciplinary team of all specialties (sometimes referred to as a “tumor board”) will review the options and proposed treatment plan for each ACC patient.

The “Subspecialty” column of the listing may be useful for patients with tumors in less common sites or seeking particular treatments. Most patients dealing with primary tumors will seek out a surgeon focused on the head & neck or otolaryngology (ear, nose & throat). However, patients with primary tumors in the trachea or lung metastases may wish to consult with a thoracic surgeon. Other surgery subspecialties may be appropriate for patients with ACC of the vulva (gynecology) or the lacrimal gland (ophthalmology). Among the radiation oncologists and radiologists, the “Subspecialty” column indicates if the physician offers treatments other than standard photon treatment, such as protons, carbon ions, neutrons, stereotactic radiation, radiofrequency ablation (RFA), cryoablation or brachytherapy. Some interventional radiologists who perform ablations are included in this listing but more may be available at https://www.sirweb.org/Finder/SearchByLocation. Some patients with substantial oral surgery require a prosthodontist; some are included in this listing but more in the United States may be available at www.gotoapro.org/find-a-prosthodontist/.

The Physicians List is available in PDF format from the ACCOI website, with each entry first alphabetized by country or state (if in the United States), then by city, and then by institution. Physicians at each institution are organized by specialty before being alphabetized by last name.

To search the Physicians List in the table below, use the “Search” bar to input a location, specialty or name. Multiple search terms may be used to narrow down the list (e.g. “new york surgery” or “australia radiation”).