In addition to learning from the information on this site, you also may learn from the wealth of experience housed in the ACC patient community. Information from peer-to-peer groups should not substitute for the advice of an experienced physician, but it may provide useful perspectives and emotional support.
These groups include many ACC patients looking to connect and support each other:
ACC Organization International (Facebook – General)
ACC Sharing Info and Support (Facebook – General)
ACC Survivor Family and Friends (Facebook – General)
ACC Warriors (Facebook – General)
Adenoid Cystic Carcinoma (How do we cope?) (Facebook – General)
ACC – Breast (Facebook – ACC of the breast)
ACC – Tracheal/bronchial (Facebook – ACC of the trachea and bronchus)
Primary Cutaneous ACC Support Group (Facebook – ACC of the skin)
Without a Ribbon (Facebook – Australian patients)
Salivary Gland Cancer UK (Facebook – UK patients)
Salivary Gland Cancer UK (Website – United Kingdom)
Macmillan Cancer Support: ACC Forum (Website – United Kingdom)
Patiëntenvereniging Speekselklierkanker (Website – Netherlands)
CORASSO (Website – France)
ACCKT (Website – Kids and Teens)
